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Unlocking the potential of state level data: Opportunities and promising practices for using state level data for monitoring health and related outcomes in people with intellectual and developmental disabilities

Unlocking the potential of state level data: Opportunities and promising practices for using state level data for monitoring health and related outcomes in people with intellectual and developmental disabilities, and related outcomes in people with intellectual and developmental disabilities Alexandra Bonardi, on Intellectual and Developmental Disabilities Running Title: Unlocking the Potential of State Level, to describe the health of people with intellectual and developmental disabilities (IDD). While, for services. A compendium of Health Data Sources for Adults with Intellectual Disabilities (Center, , the population of children and adults with intellectual and developmental disabilities (IDD) using

https://www.aaidd.org/docs/default-source/default-document-library/bonardi.pdf?sfvrsn=8f8c3621_0

Community Capacity to Provide Mental/behavioral Health Services for Individuals with Intellectual and Developmental Disabilities Transitioning from State Operated Developmental Centers

Community Capacity to Provide Mental/behavioral Health Services for Individuals with Intellectual and Developmental Disabilities Transitioning from State Operated Developmental Centers, to support individuals with intellectual and developmental disabilities who had transitioned out of state, , intellectual and developmental disabilities, dual diagnosis, mental/behavioral health treatment, is not uncommon. Lunsky and Elserafi (2011) reported that individuals with intellectual disabilities who had, of residential placements for people with intellectual disabilities. Journal of Intellectual, for people with intellectual and developmental disabilities. Intellectual and Developmental

https://www.aaidd.org/docs/default-source/default-document-library/lulinsky.pdf?sfvrsn=531c3521_0

Employment for Individuals with Intellectual and Developmental Disabilities

Employment for Individuals with Intellectual and Developmental Disabilities

https://www.aaidd.org/education/events/2017/06/13/default-calendar/employment-for-individuals-with-intellectual-and-developmental-disabilities

AAIDD Podcasts Now Available on iTunes

interviews with editors and authors of various publications on intellectual and developmental disabilities.Bruce Appelgren, Director of Publications at AAIDD, says, “This is a great opportunity for disability, , the following podcasts are available as downloads: -What is Intellectual Disability -Special Education and Intellectual Disability -Legal Issues and Intellectual Disability -Supervisor Training and Staff Enjoyment -End of Life Care and Intellectual Disability. Listen to the podcasts. You can

https://www.aaidd.org/news-policy/news/article/2010/01/25/aaidd-podcasts-now-available-on-itunes

IDD & Disability Identity

...Journal: American Journal on Intellectual and Developmental DisabilitiesPublished: 01 May 2020 Tokenism, in Patient-Oriented Research for People With Intellectual and Developmental DisabilitiesNatasha, : Intellectual and Developmental DisabilitiesPublished: 01 April 2015 Stigma: Barriers to Culture and Identity, Acosta, T. J. SutcliffeJournal: Intellectual and Developmental DisabilitiesPublished: 01 April 2013, Tournier ... Journal: American Journal on Intellectual and Developmental Disabilities DOI: https

https://www.aaidd.org/intellectual-disability/intersectionality/idd-disability-identity

James R. Thompson, PhD, 2013-2014

,aformerpresidentoftheAmerican AssociationonIntellectualandDevelopmental Disabilities(AAIDD, futureleadersinourinterdisciplinaryfieldof intellectualdisabilityandrelateddevelopmental disabilities(ID/DD, . Therearetoomanypeoplewithdevelopmental disabilitiesandtoomanypeoplethatlovethemfor ourvoicestobeignored.Also, (noticethatpersonisrightnexttoit),community, lives, intellectual,anddisabilities (Tagzedoautomat- icallycombinescertainwords,andthiswasthecase with disability and disabilities).Thesefivewords

https://www.aaidd.org/docs/default-source/about-aaidd/james-r-thompson-phd-2013-2014.pdf?sfvrsn=2771a9a3_0

Marc J. Tassé, PhD, 2012-2013

- tionforthefieldofintellectualanddevelopmental disabilities.Ourfieldhashadmanyaccomplish- mentsinresearch, ,replacingitwith‘‘intellectual disability.’’Thisaforementionedlistisfarfrom, withinthefieldofintellectualanddevelopmental disabilities.Whethermentionedinlegislation, - ingtheDSM-5proposaltoadopt‘‘intellectual developmentaldisorder’’isthatitisregressiveand

https://www.aaidd.org/docs/default-source/about-aaidd/marc-j-tassé-phd-2012-2013.pdf?sfvrsn=330fff7e_0

Amy S. Hewitt, PhD, 2014-2015

disabilitiestheyhavebetteroutcomesasadults. Figure10. PeoplewithIDDinlargepublicfacilities.AdaptedfromIn, disabilitieshavetogothrough.(AmosHewitt- Perry,highschoolstudent) Lessisknownabouttheopportunitiesfor, disabilitiesinemploymentfindingandsupport activitiesthatareavailabletothefullcongregation

https://www.aaidd.org/docs/default-source/about-aaidd/amy-s-hewitt-phd-2014-2015.pdf?sfvrsn=b1f06354_0

Handout 3: Thompson et al School Psychology Assessment

Standardized Assessment Accommodations for Individuals with Intellectual Disability Talia Thompson, Jeanine M, /10.1007/s40688-018-0171-4 Author's personal copy disabilitiesandthelegalprecedenceforprovidingaccommo- dations.Next, InterventionwithPersonswith Disabilities (APA 2 012) NationalAssociationofSchoolPsychology, disabilitiesandbackground. -Select,administer,andinterpret instrumentsandproceduresinlightof

https://www.aaidd.org/docs/default-source/default-document-library/thompson-et-al-school-psychology-assessment.pdf?sfvrsn=e8683721_0

DABS Literature

, Intellectual and Developmental Disabilities. Vol 54, No 6, pp. 381-390. Tassé, M.J., Schalock, R. L, in the field of intellectual disability, American Journal on Intellectual and Developmental Disabilities. Vol, and Research Briefs FAQS Contact Us Order SIS DABS DABS Literature Intellectual Disability Historical Context Criteria FAQs on Intellectual Disability Intersectionality, in children with and without intellectual disability, International Journal of Clinical and Health

https://www.aaidd.org/dabs/literature

SJMRRNewsletter4

with individuals with intellec- tual disabilities (ID), the Diagnostic Manual-Intellectual Disability, - ness to the mental health challenges of persons with intellectual disabilities. The DM-ID and DM-ID, and Developmental Disorders and Journal of Mental Health Re- search in Intellectual Disabilities, of intellectual and developmental disabilities.Ó Rebecca attends George Mason University where she, ranked journals: Intellectual and Developmental Disabilities and the American Journal on Mental

https://www.aaidd.org/docs/default-source/about-aaidd/sjmrrnewsletter4.pdf?sfvrsn=fb414a8_2

LIDD 2023 February

American Association on Intellectual and Developmental Disabilities (AAIDD) 8403 Colesville Road, and Research Briefs FAQS Contact Us Order SIS DABS DABS Literature Intellectual Disability Historical Context Criteria FAQs on Intellectual Disability Intersectionality, heard, “We don’t treat people with Intellectual Disability (ID)”? I certainly have. This message can, Carter, PhD, FAAIDD,Appointed the Luther Sweet Endowed Chair in Disabilities at Baylor University

https://www.aaidd.org/publications/newsletters/leadership-in-idd/lidd-2023-february

LIDD 2022 March

for People with Intellectual Disabilities . Jennifer Kurth is co-editor of the new TASH journal, are seeking young adults with intellectual and developmental disabilities to use a new web-based, American Association on Intellectual and Developmental Disabilities (AAIDD) 8403, and Research Briefs FAQS Contact Us Order SIS DABS DABS Literature Intellectual Disability Historical Context Criteria FAQs on Intellectual Disability Intersectionality

https://www.aaidd.org/publications/newsletters/leadership-in-idd/lidd-2022-march

LIDD 2022 January

With Intellectual and Developmental DisabilitiesResearchers at the University of Florida, including Jessica Kramer, FAAIDD are seeking young adults with intellectual and developmental disabilities, American Association on Intellectual and Developmental Disabilities (AAIDD) 8403 Colesville, and Research Briefs FAQS Contact Us Order SIS DABS DABS Literature Intellectual Disability Historical Context Criteria FAQs on Intellectual Disability Intersectionality

https://www.aaidd.org/publications/newsletters/leadership-in-idd/lidd-2022-january

Guidelines for Including Persons with Disabilities: Supports Intensity Scale

Guidelines for Including Persons with Disabilities: Supports Intensity Scale, Disabilities1 It is important to remember that people with developmental disabilities are, first and 1, to effectively interview people with intellectual and developmental disabilities. T h e following, with Intellectual Disabilities (pp. 1 1 5 - 1 3 2 ) . In E. Emerson, C . Hatton, T. Thompson, and T. Parmenter (Eds.), International Handbook of Applied Research in Intellectual Disabilities. West Sussex, Supports Intensity Scale GUIDELINES for Interviewing People with Disabilities Copyright

https://www.aaidd.org/docs/default-source/sis-docs/guidelines-for-including-persons-with-disabilities-supports-intensity-scale.pdf?sfvrsn=40c6cf21_0

McDonald and Raymaker Ethics in DD Research References

of University Centers on Disabilities (AUCD) and the American Association on Intellectual, in research on persons with intellectual disabilities. Technology and Disability, 13 , 151-159, with intellectual disability. Journal of Intellectual and Developmental Disabilities, 34 , 45-54. Ethical, for international multicenter research involving people with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities,1 , 57-70. Dias, J., Eardley, M., Harkness, E

https://www.aaidd.org/docs/default-source/events/mcdonald-and-raymaker-ethics-in-dd-research-references.pdf?sfvrsn=4c45e19f_2

PowerPoint Slides

with intellectual disability. Journal of Intellectual Disabilities, online first. Kidney, C . & McDonald, K, Journal on Intellectual and Developmental Disabilities, 122, 78-92. McDonald, K., Conroy, N., Olick, R, of Policy and Practice in Intellectual Disabilities, 11, 83-91. Stack, E. & McDonald, K. (2018). We, Participatory Research. Journal of Practice and Policy in Intellectual Disabilities, 15, 80-89. BHAGWANJEE, Responsible Conduct of Research with Individuals with Developmental Disabilities: Strategies

https://www.aaidd.org/docs/default-source/default-document-library/aaidd-rcr-8-29-2019-final.pdf?sfvrsn=44a83621_0

Samtani A Review of Cancer Survivorship in People with IDD

AND SURVIVORSHIP IN PEOPLE WITH INTELLECTUAL AND DEVELOPMENTAL DISABILITIESIN THE U.S.? A SCOPING REVIEW, on Intellectual and Developmental Disabilities – University Affiliated Programs, Grant, IN PWIDD Abstract People with intellectual and developmental disabilities (PWIDD) often encounter, developmental and intellectual disabilities within its scope, we made every attempt to note when, , & Perkins, 2017), for adults with intellectual disabilities (ID), particularly in the areas

https://www.aaidd.org/docs/default-source/default-document-library/samtani-a-review-of-cancer-survivorship-in-people-with-idd.pdf?sfvrsn=332c3621_2

foot21-1

American Association on Intellectual and Developmental Disabilities (AAIDD)

https://www.aaidd.org/vtc-test/test-nav/home-old/2022/01/17/foot21-1

Examining Choice and Control for People With IDD Over Time

American Journal on Intellectual and Developmental Disabilities Examining Choice and Control, from the state through its Intellectual /Developmental Disabilities agency. There are 23 Local, -level factors with choice making of individuals with intellectual and developmental disabilities, ). Outcomes important to people with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities,5(3), 150–158. Novick, M. & Lewis, C. (1967). Coefficient alpha

https://www.aaidd.org/docs/default-source/prepressarticles/examining-choice-and-control-for-people-with-idd-over-time.pdf?sfvrsn=e4ec3c21_0

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