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Member Data


Use of Member Data

AAIDD treats its member and customer data confidentially, including both personal and non-personal information, and takes data security seriously. For more information on our practices and compliance with the General Data Protection Regulation (GDPR) of the European Union, see our Privacy Policy. In compliance with Payment Card Industry (PCI) data security standards, AAIDD does not store credit card information used for electronic payments.

Membership Data Collection

AAIDD collects contact information from members (name, email, address, etc.) necessary to deliver member benefits, information of interest, and member discounts on meeting registration and bookstore purchases.

While not required for membership in AAIDD, the Association asks members to voluntarily provide demographic  information to help us understand where we are on our journey towards achieving a diverse, interdisciplinary membership. Members are notified that providing this information will in no way impact their membership, future conference submissions, or leadership opportunities with the Association.

Use of Voluntarily Provided Demographic Information

Each demographic item is entirely voluntary; members are asked to provide only the information they feel comfortable sharing and may opt out entirely. AAIDD uses this data to better understand its current membership and to inform ongoing member recruitment and retention activities. Demographic data that may be shared, if any, is de-identified and aggregated for this purpose. 

Voluntary Data Elements  

The following are the demographic data elements members may respond to within our membership system. Members may choose to respond to any they wish to, including responding to none of the elements:

Please indicate your race [pick list - US Census categories]

Please indicate your ethnicity [pick list - US Census categories]

Please indicate your current age using the ranges provided [pick list of age ranges]

Please indicate your identified gender [pick list below]

  • Female
  • Male
  • Non-binary
  • Transgender
  • Other

Please indicate all diversity factors that apply [list below]

  • Person with a disability
  • Family member of a person with a disability
  • Hold a strong faith identity
  • Identify with a cultural identity (nationality, ethnicity, locality) that reflects diversity in a US context
  • Speak a language other than English at home

Please indicate where you self-identify in your IDD career progression [pick list below]

  • Student
  • Early Career
  • Mid-Career
  • Late Career
  • Semi-Retired
  • Retired
Please indicate your current, primary work setting [pick list of work settings]

Please indicate your discipline [pick list of disciplines]

Please indicate your current, primary occupation [pick list of job categories]

How long have you been a member of AAIDD [pick list - year ranges]

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