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Leadership in IDD
January 2022

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Leadership in IDD        

January 2022


View the archive of the
Leadership in IDD newsletter here.

Perspectives

Commentary from the Field

 

Scott Landes

Scott Landes, PhD, Associate Professor, Syracuse University

I spent much time the past 2 years expressing my concern in-person and in-print over the lack of data on COVID-19 outcomes for people with IDD. Inadequate health data for people with IDD is not a new concern, but the information gap has been severely underscored by the pandemic. What I have not often verbalized is my appreciation and respect for provider organizations and states that invested the time and effort to: 1) collect COVID-19 data and2) share this data with researchers and the public in the midst of such uncertain times. Both steps took commitment and courage.

Research I conducted with Dr. Margaret Turk and colleagues revealed that COVID-19 outcomes have been more severe among people with IDD, especially those living in congregate settings. As with the general population, COVID-19 outcomes related to older age and pre-existing health conditions are of primary concern for people with IDD. None of this research would have been possible without individual providers, provider organizations, or the handful of states that had the foresight and wherewithal to collect and share data. 

Many of us will continue to advocate for better health data for people with IDD. At the same time, let us not forget to thank those providers and states that stepped up and filled the gap the past two years by collecting and sharing their data.


Notables

Recent awards, accolades, appointments, and other honors

  • Todd Wilson, FAAIDD, recognized as the CMCS Employee of the Month for December 2021. 
  • Michael Bloom, FAAIDD, Carli Friedman, Jennifer Jones, Nicole Jorwic, Matthew Kaufman, Seunghee Park, FAAIDD, and Melina Rivard receive awards from the Association.


Linkages

Opportunities to participate in research, projects, policy development, and other collaborations

Study Seeks Participants to Validate a New Functional Outcome Measure Young Adults With Intellectual and Developmental Disabilities
Researchers at the University of Florida, including Jessica Kramer, FAAIDD are seeking young adults with intellectual and developmental disabilities to use a new web-based, self-reported outcome measure to report how they do everyday activities at home, school, work and the community.



Member Spotlight

Dan Davies

Daniel K. Davies, Founder and President, AbleLink Smart Living Technologies, LLC

Member since 2001

Why did you join AAIDD?  

I met Mike Wehmeyer while he was the national staff member responsible for technology-focused initiatives at the Arc of the United States in the mid to late 90’s. Given our mutual interest in technology and the potential impact of cognitive technology on self-determination Mike brought AAIDD to my attention as a group organization to get connected with.   

Why did you choose the field of intellectual disability?  

Like many in the IDD field, I am a family member as my oldest brother John lived with intellectual disability. After working as a DSP at a service provider agency during graduate school, I worked in the aerospace field as a human factors engineer. These life and work experiences coalesced to direct my focus on applying technology to try to improve the lives of individuals like my brother.

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