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National Goals on Health Equity’s Recommendations for Disability Competent Healthcare

National Goals on Health Equity’s Recommendations for Disability Competent Healthcare, , data, systems, funding 4 Background The definition of intellectual and developmental, , and inconsistent coding (i.e. code capture) in health records. Despite intellectual disability, type of developmental disability (e.g., cerebral palsy, autism) and not have intellectual, with Intellectual Disability and Health Care Practices Toward Them: A Systematic Review. Psychiatria, and developmental disabilities. Journal of Intellectual & Developmental Disability, 48(1), 91–99

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Recommendations of the Consent and Decision-Making Strand from the National Goals 2024 Conference

decision-making of their adult offspring with intellectual disabilities. Disability and Rehabilitation, for people with intellectual disability: A systematic literature review. BMJ Quality & Safety, 33(5, with adults with intellectual disability in the US. Disability and Health Journal, 17(4), 101669. https, of terminology when referring to intellectual and developmental disabilities. A common form, the condition (e.g., intellectual and developmental disabilities). At the time of this writing

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Supporting Capabilities for Flourishing: Philosophical Foundations of Equity in Health and Well-Being for People with Disabilities

, constraints, and facilitators. Journal of Intellectual & Developmental Disability, 48(1), 46–57, spectrum disorder or intellectual disability: A preliminary study. Annals of Rehabilitation Medicine, ). The nature of leisure in the lives of older adults with intellectual disability. Journal of Intellectual Disability Research, 42(2), 122– 130. https://doi.org/10.1046/j.1365-2788.1998.00103.x, is no surprise that health inequalities remain a major ethical issue for people with intellectual

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Usability, Acceptability, Feasibility, and Effectiveness of the Systematic Supports Planning Process: A Pilot Evaluation

categories of intellectual disability (17.9%), autism (40.8%), and multiple disabilities (15.0, -S-24-00044R1 Article Type: Research Article Keywords: intellectual and developmental disabilities; inclusion, evidence supporting the benefits of inclusive education, students with intellectual and developmental, , students with intellectual and developmental disabilities (IDD) largely spend a majority, for students with IDD in general education classrooms. Keywords: intellectual and developmental

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Gender and Sexual Self-Determination in the Lives of LGBTQ+ Adults With Intellectual and Developmental Disabilities

Gender and Sexual Self-Determination in the Lives of LGBTQ+ Adults With Intellectual and Developmental Disabilities, +, and identified as having an intellectual and/or developmental disability. To increase the diversity, was looking specifically for LGBTQ+ people with an intellectual and/or developmental disability who were, Intellectual and Developmental Disabilities Gender and Sexual Self-Determination in the Lives of LGBTQ+ Adults with Intellectual and Developmental Disabilities --Manuscript Draft-- Manuscript, : UNITED STATES Abstract: Adults with intellectual and developmental disabilities have the right

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A Social-Ecological Approach to Inclusive Research with People With Intellectual Disability Intellectual and Developmental Disabilities

A Social-Ecological Approach to Inclusive Research with People With Intellectual Disability Intellectual and Developmental Disabilities, with People with Intellectual Disability Intellectual and Developmental Disabilities --Manuscript, research; social-ecological model; supports; Intellectual Disability Corresponding Author: Geonhwa Kim, for the inclusion of researchers with intellectual disability. Personal, research, and social outcomes, to Inclusive Research with People with Intellectual Disability Declaration of interest statement: We, for the inclusion of researchers with intellectual disability. Personal, research, and social outcomes of inclusive

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Characterizing Developmental and Behavioral Profiles in Developmental Synaptopathies to Inform Clinical Trial Endpoints

syndrome (PHTS, N=69). Results On average, intellectual disability (ID) severity was severe, ), intellectual disability (ID), neuropsychological assessment, neurodevelopmental disorders, such as intellectual disability (ID) and autism spectrum disorder (ASD) (Sanders et al., 2019, American Journal on Intellectual and Developmental Disabilities Characterizing developmental, (TSC, N=98) and PTEN Hamartoma Tumor syndrome (PHTS, N=69). Results: On average, intellectual

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Experiences of Early Childhood Special Education Teachers in Inclusive Classroom: A Phenomenological Study

children, the paper adopted the definition of inclusion provided by the Division for Early Childhood, , and intellectual and developmental disabilities. As a result, the center embraced the inclusive, to succeed, whether a EARLY CHILDHOOD SPECIAL EDUCATION 17 child has a disability or not." Sara echoed

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Enhancing Religious and Spiritual Inclusion of Jewish Youth With Intellectual and/or Developmental Disabilities

Enhancing Religious and Spiritual Inclusion of Jewish Youth With Intellectual and/or Developmental Disabilities, , and parents of individuals with intellectual disability. Intellectual and Developmental Disabilities, with intellectual disability and/or autism spectrum disorders. American Journal on Intellectual, Inclusion Enhancing Religious and Spiritual Inclusion of Jewish Youth with Intellectual, , and existing studies often solely explore if youth with intellectual and/or developmental disabilities, the inclusion of youth with intellectual and developmental disabilities (I/DD). In this multiple case study

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Retrospective Reports of Skill Attainment and Loss in Phelan-McDermid Syndrome

American Journal on Intellectual and Developmental Disabilities Retrospective Reports of Skill, of chromosome 22 (Phelan et al., 2022; Phelan et al., 1993). PMS is associated with intellectual disability and often severe motor impairments, absence of speech, behavioral disorders, and neurologic, ). The severity of delays, like that of eventual disability, appears to be related to deletion size, described in a variety of other genetic conditions associated with neurodevelopmental disability (Goin

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Individual and Environmental Factors Associated With Polypsychotropic Medication Regimens Among Adults With Intellectual Disability

Individual and Environmental Factors Associated With Polypsychotropic Medication Regimens Among Adults With Intellectual Disability, Keywords: adults; Intellectual Disability; polypsychopharmacy; individual factors; environmental factors, medication regimens using a population-based sample of adults with intellectual disability who, Factors Associated with Polypsychotropic Medication Regimens among 1 Adults with Intellectual Disability, adults with intellectual 6 disability. Psychotropic medications are often implicated in polypharmacy, with intellectual 9 disability who receive Home and Community-Based Services waivers in Oklahoma

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Executive and Social Functioning in Fetal Alcohol Spectrum Disorders: Comparison to Autism

nonverbal IQ scores above the range of intellectual disability (Christensen, 2016; Mattson et al., 2019, have focused on children without intellectual disability or have failed to address nonverbal, , with or without intellectual disability; different ages). For example, in older participants without intellectual disability, Kenny et al. (2022) found that 11- to 19-year-olds with ASD had global executive, , but not all). Addressing intellectual disability, Tsermentseli et al. (2018) reported that 6

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SAATHI: Pilot Transition Intervention for South Asian Parents of Children With Intellectual and Developmental Disabilities

SAATHI: Pilot Transition Intervention for South Asian Parents of Children With Intellectual and Developmental Disabilities, Education Act (IDEA) Part B with an intellectual disability (ID) were racially minoritized (U.S., It is estimated that 31.6% of Asian students with intellectual disability and autism were served, . Most of the diagnoses included autism (61.3%), intellectual disability (38.7%), and speech, Intellectual and Developmental Disabilities SAATHI: Pilot Transition Intervention for South Asian Parents of Children with Intellectual and Developmental Disabilities --Manuscript Draft

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‘We need to be able to connect with people.’ Leveraging Direct Support Professionals’ Perspectives to Advance Social Inclusion

to people with disabilities. Journal of Intellectual Disability Research 39, 255–62. https, for people with intellectual disability: A scoping review. Journal of Applied Research in Intellectual, with severe and profound intellectual disabilities. Journal of Intellectual Disability Research, 53, 363, encounters between people with and without intellectual disability. Journal of Applied Research, disability. Journal of Applied Research in Intellectual Disabilities, 22, 264-275. https://doi.org

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Inclusion Practices for Elementary Autistic Students: A Systematic Review

and intellectual disability (Morningstar et al., 2017; Williamson et al., 2020). In the U.S., by Kuntz and Carter examining interventions for students with intellectual disability in inclusive, . Other participants included three students with intellectual disability. Study participants spanned, of the school day (U.S. Department of Education, 2023). Originally recognized as a distinct disability, and according to education-related legislation, autism is considered a 'disability' classification. Out

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Conceptualizing Fidelity of Implementation of a Technology-Delivered Self-Determination Intervention

on student outcomes with a particular focus on supporting students with intellectual and developmental, students with intellectual and developmental disabilities to access self-determination instruction, students with intellectual and developmental disabilities planning for their transition from school, of students with a range of disabilities, including intellectual and developmental disabilities, can, on fidelity data if, for example, a greater need to focus on how to support students with intellectual

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Advancing Inclusive Research in Intellectual and Developmental Disabilities Building Community and Supports for Participation

Advancing Inclusive Research in Intellectual and Developmental Disabilities Building Community and Supports for Participation, in intellectual and developmental disability research at our university and beyond. We hope this approach, of intellectual and developmental disability research. We have increasingly been exploring ways to advance, with intellectual disability. Journal of Applied Research in Intellectual Disabilities, 27(1), 3- 12. https, inclusive health research. Journal of Intellectual Disability Research, 63(1), 1-11. García Iriarte, E, Intellectual and Developmental Disabilities Advancing Inclusive Research in Intellectual

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Genetic Subtypes of Phelan-McDermid Syndrome Exhibit Similar Rates of Change Despite Differences in Level of Impairment in Developmental Constructs

- ranging degrees of intellectual disability, developmental delays, behavioral abnormalities, associations between genotype and phenotype observed with degree of intellectual disability, ) is varied, with wide-ranging degrees of intellectual disability, developmental delays, behavioral, intellectual disability to mild or no cognitive impairment (Garber, Visootsak, & Warren, 2008; Levy, ). The common features of PMS include developmental delays leading to intellectual disability, epilepsy

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Which Score for What? Operationalizing Standardized Cognitive Test Performance for the Assessment of Change

American Journal on Intellectual and Developmental Disabilities WHICH SCORE FOR WHAT, are key concepts of interest in longitudinal studies of intellectual and developmental disabilities (IDD, of intellectual and developmental disabilities (IDD). Normative scores (e.g., IQ) are often used, and emotional abilities, and adaptive behavior are central to research on intellectual and developmental disability (IDD). Developmental measures that may have robust psychometric profiles when used

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Through the Looking Glass - Health of People With Intellectual and Developmental Disabilities

Through the Looking Glass - Health of People With Intellectual and Developmental Disabilities, definition and departs from a diagnostic approach. Intellectual disability is intended to be picked up, in the definition for intellectual disability of the American Association on Intellectual and Developmental, of data and lack of a common definition. Once again, disability advocates took on the challenge, is directly linked to this operational definition of disability for surveys. Drawn from the American, in measuring intellectual disability, it was adopted, combining respondents across meaningful

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289 search results for definition of intellectual disability