Improving Data Infrastructure for Person-Centered Research on IDD
Presenters:
- Emma Plourde, MPH, U.S. Department of Health and Human Services
- Rina Dhopeshwarkar, MPH, NORC at the University of Chicago
In this webinar presenters will describe findings from an environmental scan and stakeholder outreach activities to identify and prioritize gaps in and opportunities for improving the data infrastructure available for conducting patient-centered outcomes research for individuals with intellectual and developmental disabilities (DD). They will also provide updates on recent efforts funded through the Office of the Secretary Patient-Centered Outcomes Research Trust Fund (OS-PCORTF) to advance data capacity for IDD-focused PCOR.
Register here