Skip to Content

List of Past Events


Past Trainings and Events

Please note only webinars are recorded; the archive is generally available on the website the following day.

Beginning February 2021, the webinar archive will exclusively be a member benefit. 

Virtual professional development sessions such as Mentorship in a Minute and Crucial Conversations, are not recorded and participation is limited to AAIDD members.

Man thumbs up

End of Life: Issues and Resources for People with Intellectual Disability and Caregivers

Contact Name:   Lindsey Polansky

Contact E Mail:

Date: January 23, 2019
Time: 4:00 p.m. - 5:00 p.m. EST


End of Life: Issues and Resources for People with Intellectual Disability and Caregivers

Videos referenced during webinar can be found here

Content Overview:

Think about not being told that a close family member has died. Picture not being invited to the funeral. Then imagine that no one will talk to you about the death or explain what happened. Sadly, a number of people with intellectual disability have faced such distressing circumstances. 

For over ten years, Australian researchers Professor Roger Stancliffe and Dr. Michele Wiese have collaborated on a growing body of research that examines end-of-life issues for people with intellectual disability and their caregivers. They discovered that, when it comes to dying and death, many people with intellectual disability are confronted with a benign conspiracy of silence. 

In this webinar, Roger and Michele will address these issues and what can be done about them, by: 

1. Describing major research findings about understanding and planning for end of life by people with intellectual disability. 

2. Presenting key results from their controlled intervention study which trained disability support workers to teach people with intellectual disability about dying and death, and evaluated the outcomes. These findings include data on whether having repeated conversations about end of life affects outcomes such as depression, anxiety, or fear of death among participants with intellectual disability. 

3. Introducing and demonstrating a major new, free online resource Talking End of Life (TEL) …with people with intellectual disability TEL is designed for users to gain the knowledge, skills, resources and confidence to help people with intellectual disability understand and plan for end of life. 

Roger J. Stancliffe, PhD FAAIDD, FIASSIDD 
Michele Y. Wiese, PhD, MAPS  







Connect with AAIDD on Social Media

Join The AAIDD Email List

Annual Conference