BEGIN:VCALENDAR VERSION:2.0 METHOD:PUBLISH PRODID:-//Telerik Inc.//Sitefinity CMS 13.2//EN BEGIN:VTIMEZONE TZID:Eastern Standard Time BEGIN:STANDARD DTSTART:20251102T020000 RRULE:FREQ=YEARLY;BYDAY=1SU;BYHOUR=2;BYMINUTE=0;BYMONTH=11 TZNAME:Eastern Standard Time TZOFFSETFROM:-0400 TZOFFSETTO:-0500 END:STANDARD BEGIN:DAYLIGHT DTSTART:20250301T020000 RRULE:FREQ=YEARLY;BYDAY=2SU;BYHOUR=2;BYMINUTE=0;BYMONTH=3 TZNAME:Eastern Daylight Time TZOFFSETFROM:-0500 TZOFFSETTO:-0400 END:DAYLIGHT END:VTIMEZONE BEGIN:VEVENT DESCRIPTION:Date: \;January 23\, 2019\nTime: 4:00 p.m. - 5:00 p.m. EST\ n\n \;\n\nEnd of Life: Issues and Resources for People with Intellectu al Disability and Caregivers\n\n\n\n\nVideos referenced during webinar can be found here\n\nContent Overview:\n\n \nThink about not being told that a close family member has died. Picture not being invited to the funeral. Then imagine that no one will talk to you about the death or explain what happened. Sadly\, a number of people with intellectual disability have fac ed such distressing circumstances. \;\n\nFor over ten years\, Australi an researchers Professor Roger Stancliffe and Dr. Michele Wiese have colla borated on a growing body of research that examines end-of-life issues for people with intellectual \;disability and their caregivers. They disc overed that\, when it comes to dying and death\, many people with intellec tual disability are confronted with a benign conspiracy of silence. \; \n\nIn this webinar\, Roger and Michele will address these issues and what can be done about them\, by: \;\n\n1. Describing major research findi ngs about understanding and planning for end of life by people with intell ectual disability. \;\n\n2. Presenting key results from their controll ed intervention study which trained disability support workers to teach pe ople with intellectual disability about dying and death\, and evaluated th e outcomes. These findings include data on whether having repeated convers ations about end of life affects outcomes such as depression\, anxiety\, o r fear of death among participants with intellectual disability. \;\n\ n3. Introducing and demonstrating a major new\, free online resource Talki ng End of Life (TEL) &hellip\;with people with intellectual disability htt ps://www.caresearch.com.au/TEL/ TEL is designed for users to gain the know ledge\, skills\, resources and confidence to help people with intellectual disability understand and plan for end of life. \;\n\nPresenters:&nbs p\;\nRoger J. Stancliffe\, PhD FAAIDD\, FIASSIDD \;\nMichele Y. Wiese\ , PhD\, MAPS \; \;\n\n\n\n\n \;\n \;\n \;\n \;\n&n bsp\;\n \;\n \n\n \;\n \;\n \;\n\n \;\n \;\n \ ;\n\n \;\n \;\n \;\n\n \;\n\n \;\n \; DTEND:20190123T220000Z DTSTAMP:20260309T055316Z DTSTART:20190123T210000Z LOCATION: SEQUENCE:0 SUMMARY:End of Life: Issues and Resources for People with Intellectual Disa bility and Caregivers UID:RFCALITEM639086179966913271 X-ALT-DESC;FMTTYPE=text/html:

Date: \;January 23\, 2019
\ nTime: 4:00 p.m. - 5:00 p.m. EST
\n
\n \;\n

\n

End of Life: Issues and Resources for People with Intellectual Disability and Caregivers

\n


\n\n
\n
\nVid eos referenced during webinar can be found here< /a>
\n
\nCont ent Overview:
\n

\n \n

Think about not being told that a close family member has died. Picture no t being invited to the funeral. Then imagine that no one will talk to you about the death or explain what happened. Sadly\, a number of people with intellectual disability have faced such distressing circumstances. \;< br />\n
\nFor over ten years\, Australian researchers Professor Roger Stancliffe and Dr. Michele Wiese have collaborated on a growing body of r esearch that examines end-of-life issues for people with intellectual  \;disability and their caregivers. They discovered that\, when it comes to dying and death\, many people with intellectual disability are confronted with a benign conspiracy of silence. \;
\n
\nIn this webina r\, Roger and Michele will address these issues and what can be done about them\, by: \;
\n
\n1. Describing major research findings ab out understanding and planning for end of life by people with intellectual disability. \;
\n
\n2. Presenting key results from their co ntrolled intervention study which trained disability support workers to te ach people with intellectual disability about dying and death\, and evalua ted the outcomes. These findings include data on whether having repeated c onversations about end of life affects outcomes such as depression\, anxie ty\, or fear of death among participants with intellectual disability.&nbs p\;
\n
\n3. Introducing and demonstrating a major new\, free onl ine resource Talking End of Life (TEL) &hellip\;with people with intellect ual disability https://www.caresearch.com.au/TEL/ TEL is designed for user s to gain the knowledge\, skills\, resources and confidence to help people with intellectual disability understand and plan for end of life. \;< br />\n
\nPresente rs: \;
\nRoger J. Stancliffe\, PhD FAAIDD\, FIASS IDD \;
\nMichele Y. Wiese\, PhD\, MAPS \; \;
\n

\n

\n


\n

\n
 \;
\n
 \;
\n
 \;
\n
 \;
\n
 \;
\n
 \;
\n
\n\n
 \;
\n
 \;
\n
 \;
\n
\n
 \;
\n
 \;
\n
 \;
\n
\n
 \;
\n
 \;
\n
 \;
\n
\n
 \;
\n
\n
 \;
\n
& nbsp\;
END:VEVENT END:VCALENDAR